The National Council for Palliative Care (NCPC) is the umbrella charity for all those involved in palliative, end of life and hospice care in England, Wales and Northern Ireland.
Since 2009 NCPC has led the Dying Matters coalition. Dying Matters is a coalition of 30,000 members across England and Wales which aims to help people talk more openly about dying, death and bereavement, and to make plans for the end of life. Its membership includes hospices, care homes, NHS organisations and staff, GPs, funeral directors, the legal sector, charities, faith groups and many more.
Homeward Bound is an initiative driven by Lesley Goodburn a patient leader who wanted to share the journey that she and her husband Seth made through devastating diagnosis of pancreatic cancer. Seth died just 33 short and heart-breaking days after his diagnosis.
Lesley promised Seth before he died that she would work to raise awareness of the signs and symptoms of pancreatic cancer and raise awareness of the gap between the person centred aspirations of the NHS and the reality of end of life care in an acute hospital.
Lesley wrote letters after Seth died to various healthcare professionals explaining what it felt like to be the person who is dying or the family supporting them and these letters were shared with National Council for Palliative Care (NCPC)
NCPC then commissioned playwright Brian Daniels to work with Lesley to develop a play about compassion at end of life. The play was launched in March 2016 and from there a partnership was developed between NCPC, Pancreatic Cancer UK (PCUK) and Leeds Teaching Hospitals NHS Trust (LTHNT) to develop a package of educational resources to accompany the play. NHSE and St Giles Hospice have now also entered the partnership to produce a film of the play to accompany the educational package.
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