There are approximately 12.3millon Children and Young People in England, that’s 22% of the population and their experiences of care matter.
We cannot address experiences of care unless we take a moment to ask, how is for you? What’s working, what could be better? The challenging element of working with Children and Young People is tailoring our communication to their developmental stage so we get the best outcome for all. As a Children’s Nurse I’ve worked in the NHS for nearly 26 years and fully appreciate the busyness of day to day clinical practice and the demands made on staff, for health care professionals juggling is a critical component of our job description! Yet it’s the combination of science, art and humanism that create moments that matter to the Children, Young People and Families/Carers we have the privilege of serving, whether that be on a one to one, in a group situation, or on issues such as configuration of services.
Children, Young People and Families/Carers constantly inspire me, children like Rhys who had a renal transplant at 18months of age and showed us what he didn’t like by breath holding – a pretty scary communication strategy which was very effective! Daniel, 14 who when I visited his school having spent a week in hospital asked me to take a note back to the NHS reminding us how scared patients are (attached). Thines who has Brittle Bones shared ‘in my 19 year of using NHS Services no one has ever once asked how is it for you?’ and parents including Jane Raca who writes eloquently of her experiences of ‘Standing up for James’ her son with complex disabilities and having to constantly challenge the system about her son’s and family’s experiences of care.
I am a bit of fan of Social Media, it’s a great way to make connections with users of services, including the wonderful Adam who tweets as @Adsthepoet he shares his experiences of care by blinking and blogging, and parents such as Rick, tweeting as @38lineblog dad to Isaac challenges how we are delivering on the 6Cs, Compassion, Care, Competence, Commitment, Communication and Courage. Social Media also offers professional connections with wonderful colleagues such as Cath Battrick in Southampton tweeting as @wooffa and Jerusha MurdochKelly tweeting as @jerushaMK and Walter Tan who tweets from @RMCHosp and Emily Roberts tweeting as @emily_melville – they all share how they are working to improve experiences of care across the country in real time, creating conversations that challenges current practices.
Of course I also have a remit for Maternity experiences of care, and inspirational now retired Consultant Midwife Sheena Byrom @SafefemmeSB is a twitter mentor! If we create great maternity experiences that the best foundation for that child and family that we could wish for. Sadly things don’t always go well and recent mapping of care offered to women experiencing miscarriage http://www.nhsiq.nhs.uk/resource-search/publications/pregnancy-loss.aspx highlighted there’s lots of good practice across the country we could be sharing to improve experiences in often incredibly sad situations.
My current role at NHS England as Head of Patient Experience, brings together my previous clinical, academic, managerial and service improvement roles, it’s a privilege to be part of a social movement that is amplifying experiences of care, including the 22% of population, our Children and Young People who have a right to the best health care possible (UNCRC 1989)
I am delighted to be recognised by the Patient Experience Network, it’s a team I have the utmost respect for, however we are all outstanding contributors patient experience and all make a contribution by the attitudes we choose each day.
Head of Patient Experience – Maternity, Newborn, Children and Young People
Mobile: 0782 4545954
Email: firstname.lastname@example.org Twitter: @kathevans2
‘High quality care for all, now and for future generations’